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Mark and Jami Grassi
Join us for a screening of the award-winning movie “The Ataxian,” a fundraiser to benefit The Friedreich’s Ataxia Research Alliance (FARA).
How would you react to a life-debilitating and fatal illness? In this film, one man shows the world that it is possible to take action and find hope under even the most life-threatening and daunting of circumstances. At age 17, Kyle Bryant was diagnosed with the relatively unknown progressive neuromuscular disease, Friedreich’s ataxia (FA), for which there is no medication, nor cure. As Kyle lost his ability to play his favorite sports and even walk, he began biking long distances in a specially outfitted “trike.” When he is finally relegated to a wheelchair, Kyle decides that enough is enough. He enlists the help of three friends, Sean—who also has FA—Mike Mellot and John Lockwood, and along with a support crew, they embark on the “world’s toughest bike race,” the Race Across America (RAAM).
Click here to purchase tickets THE ATAXIAN
View the trailer here Ataxian Trailer